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Oompa Loompa

Experience with Prostrate Cancer

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Hi mate,

That call from the Dr can be a bit scary. I was told by people in the medical field that the reason Dr's don't like to use PSA blood tests is that the volume of false positives (I think that is the term) can throw the stats out ...............

Based on my experience, get the tests done and sleep well at night, but each to their own.

Good luck with it all.

Cheers

NSF

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Go easy the next step is go see a urologist, then there is another investigation a TRUS trans rectal ultra sound and biopsy. 

The renal ultra sound and 24 hour BP monitors are not routine for high PSA, you must have high blood pressure 

The PSA level relates to size of prostate, it being high could possibly be due to large prostate. May just be a case of keeping an eye on it, maybe down the track may need channel widening TURP trans urethral resection prostate.

I had my PSA level checked before Christmas, I didn't ride a bike for over a week beforehand. My level was above the middle of normal for my age, so I've been advised to recheck in 5 years. 

Thinking about you mate and hoping everything turns out OK

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10 minutes ago, Clappers said:

The renal ultra sound and 24 hour BP monitors are not routine for high PSA, you must have high blood pressure. 

The Doc did also say that I had high blood pressure, but I'm pretty sure he said the renal ultrasound was to check the prostate.  The notes on the request form are 'Renal US (High PSA, exclude prostate pathology). 

 

14 minutes ago, Clappers said:

 The PSA level relates to size of prostate, it being high could possibly be due to large prostate...

Well, you know what they say...  'Large Prostate, Large... '  Haha :lol:

Thanks guys, I'm not panicking just yet but it does make you think.

Hope you're going ok too Clappers.  Thanks for the info.

 

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56 minutes ago, Notsofast said:

That call from the Dr can be a bit scary...

I'll say... but like you said earlier, not much you can do about it, just get on with it.

58 minutes ago, Notsofast said:

Based on my experience, get the tests done and sleep well at night, but each to their own.

Thanks mate, your experience is valued!

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I had a borderline high PSA - 4.1 - and decided to do all the tests, including a biopsy. Everything was negative, except for one inclusive biopsy sample (out of 14), which was non-positive, non-negative. Been doing annual tests and exams with a urologist ever since, and everything has stayed stable. My prostate is somewhat enlarged, but not to the point of being a problem. It's good to know what you're dealing with and what you need to keep an eye on.

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I've been dealing with prostate problems since my mid-30s, it is very enlarged but 2 biopsies, ultrasounds and a special MRI say no cancer.  I now take medication (Tamulosin) for the waterworks issues it causes & have a PSA test every 6mths.  I have an excellent urologist in Port Macquarie, Dr Nader Awad, one of those rare specialists who takes the time to explain everything to you properly.

Re the PSA test, it is not so much the absolute level, but a significant change that they look for.  Mine went up over 10 or so years from about 3 to 7.  To put that in perspective, my mates brother who was younger than me died of prostate cancer last week & his PSA was in the 100's.

They now think an enlarged prostate (the benign type I seem to have - not the cancerous type) is due to one of the breakdown products of Testosterone.  There is medication (Duodart) to stop that breakdown product which I tried for a while, but it tends to put more estrogen in your system which I did not like, so I stopped that drug & just went back to Tamulosin which assists with peeing issues.  Also, Duodart will halve your PSA level so re-set the baseline which they track.

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17 hours ago, roxii said:

Firstly good luck mate. 

Secondly I don't think any testing is a problem, the more information the better. 

I think its the next possible step where the real conjecture lies, with treatment options and there relative merits versus side effects. 

Not an expert but I suppose it depends where the test results lead you. 

I did hear once though that lots of men die with prostate cancer, not too many die of prostate cancer. 

But I suppose that perspective all changes when just one of those people becomes YOU. 

Again good luck mate. 

Ditto to what Roxxi said.

Goeasy, you'd probably remember the old man having prostate cancer since 2009. Fast forward 10 years and he's back on top of the world, although has a permanent catheter. He runs the local mens prostate support group (youngest by 10 years mind you) where he helps men who have been diagnosed with prostate cancer and the fear or troubles they face. 

If you need anyone to talk to, the old man would be more than happy to talk. 

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11 hours ago, alexholbrook said:

Goeasy, you'd probably remember the old man having prostate cancer since 2009. Fast forward 10 years and he's back on top of the world, although has a permanent catheter. He runs the local mens prostate support group (youngest by 10 years mind you) where he helps men who have been diagnosed with prostate cancer and the fear or troubles they face.

Cheers mate, it's great to hear he's doing well and is now able to help others.

It's still early days for me, I guess I'll know a bit more when I get the results from the next lot of tests and ultrasound.  I'll keep it in mind about chatting to your old man, my first question might be about where I'm supposed to carry my catheter when I go for a run!!

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A friend had his most recent annual bloods done and whilst it was not high at all, his figure had gone up a bit.

Doctor said all good, don't worry as it's low.

Got a second opinion and had to have the operation... they said he would have had 6 months - it was super aggressive.  Aged 60.

 

Moral of the story - get the blood test done so at least you have a baseline to work off.

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18 hours ago, BC_J400 said:

 

Moral of the story - get the blood test done so at least you have a baseline to work off.

Spot on

NSF

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On 31/03/2014 at 10:41 PM, Oompa Loompa said:

Well, what are people's experience with prostrate cancer?

I know a bloke that has it and it's also spread to the hip (top of the femur), femur has gone rock hard and marrow is leaking from a hole that has eaten into the bone. Femur is slowly fracturing as the bone is rock hard.

Rated a 10 on the Gleason scale, PSA at about 85, was just under 6 eight months ago.

Just for fullness of the original post.  Passed Away Dec 2017.

So, PSA under 6 in Aug 13, Dead 4 years and 4 months later - last two months in hospital with rapid deterioration and once it got into the kidneys, that was it very quickly.

Do your tests.

Edited by Oompa Loompa
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55 minutes ago, Oompa Loompa said:

Just for fullness of the original post.  Passed Away Dec 2017.

So, PSA under 6 in Aug 13, Dead 4 years and 4 months later - last two months in hospital with rapid deterioration and once it got into the kidneys, that was it very quickly.

Do your tests.

Sorry to hear and great advice 

NSF

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