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About melchski

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  1. Yes that is one position I'll be looking into. The issue with my condition is my 'over developed' psoas muscle is what compresses the artery (well now the vein/artery/graft repair) as happens when you are in a forward leaning position/closed hip angle. So leaning back/open hip I'm hoping will be ok.
  2. This sounds like a sensible approach and seems to 'kind of' match what the surgeon is saying. Despite being an awesome vascular surgeon, he has only done a few of these procedures and his words 'doesn't know enough' about the long term outcomes. I think each person who undergoes the procedure the grafts(3) (I had 3!! the length of damage was 7+cm long, right from belly button into groin, reinforced with some sort of plastic) is different and I also feel its true the long term outcomes have not been documented. I'm only 41yo and that is also why longevity is the key. I'm also keen not to 'waste' the next 10 years being scared and not riding at all. I already lived a modified life for 10 years after diagnosis (IronmanFoz) so I am no stranger to patience and re-invention of self FYI anyone following, I haven't done tris since 2005 and have no intentions on returning, but I do LOVE cycling for fun and fitness with emphasis now on comfort and the journey. Eg I now have a 'gravel bike'(Giant Toughroad) and a mountain bike (plus my old tri bike converted to flat bars). If the surgeon has said 'get an electric bike' surely I could cruise around for 1-2 hours in an upright position and be ok. After all the test I did involved smashing out sprints on the trainer for 30minutes I'm currently based in regional NSW with plans to move to Newcastle in 6months but am also prepared to travel for tests/bike setups etc. Initially (despite not being warned I may not ride again) I was told my full recovery may take 12 months, so I'm quite prepared to 'heal' for much longer than the 4 months post op that I am at now. (I'm already running, hiking, gym-ing, swimming, yoga, teaching aqua fitness, starting kayaking soon) I think I may approach a bike shop to have a electric conversion kit added to my gravel bike as well as raise the bars as high as I can. The fear is a big part of things, I do want to be sure I am 100% safe as its like I've been given a second chance at life, the surgery gave me back so much, I can't afford to muck this one up. Next review is in 6 months and I'll take some design options to the surgeon and ask if the positions may be possible.
  3. Hi All This year I underwent this procedure (May) after living with pain (even walking) for 10 years. Partly found the confidence to have the surgery from this forum so thank you to all who replied. Surgery was a success, I am now completely pain free and have even started running again (after 10 years...gees its hard and not because of the surgery) However I have recently had an ultrasound whilst cycling(upright position on flat bars, hard sprints for 30minutes) and been told I should never cycle again if I want 'not undo' the surgeons' work. The ultrasound showed the repaired section (7cm's +) is constricted with every pedal stroke hence if I cycle all would just re-occur.(or worse). Does anyone know of a person this has happened to? ie not allowed to cycle, even recreationally? I am told an electric bike may be ok (why is that? You still need to pedal) I would like to look into alternatives in the future, different positions (maybe recumbent?), is there anyone on the East Coast that takes on tricky cases/further specialised testing/possible bike build. I'm rather devastated at the moment, I fantasised for 10 years of being pain free on my bike (fun touring and mountain biking, nothing crazy serious). So now I'm pain free, but not allowed to ride. Thanks for reading.
  4. Hello again Aidan. I am making moves to have the surgery done in May or June through a Vascular Surgeon in Newcastle (Dr Arvind Deshpande). He has done two before and considers it 'not difficult'. When discussing the procedure in depth, he says he would be taking a vein from the groin area on the same side as the occluded area (so mine is a long occlusion of the external illiac, not just a kink). Is this the norm in your experience? Other athletes have had a vein removed from the calf. There would be two cuts to the abdomen, one large/long lower down and smaller higher up. Its not something he does regularly but sounds confident enough and is not someone who needs to 'tick off' this particular procedure. In terms of recovery in Dr Deshpande's opinion cycling is the last thing I would be returning to (only after 6 months) as this was the cause of the 'injury' and he wants the artery reconstruction to 'bed in' before going back to that movement pattern. Cycling would be allowed after 6 months. (I do currently cycle up to 120km/week albeit in pain) He said that swimming, walking (maybe even jog), weights etc would be ok as it is all about the hip angle/damage to the artery we are trying to avoid during recovery. Does this all sound OK and familiar? I'm trying to figure out if I should get another consultation to go through the facts with another surgeon in Sydney just to be sure. Because I am based in regional NSW. Closer to Newcastle, the Newcastle option is a lot less stressful in terms of travel. Thanks
  5. Definitely crazy times. I have met others with stories that could have been avoided. I totally feel that unless you meet a proactive doctor, many do not think outside the square and if you are just breathing its classed as a success story. What else do you want in life? Don't worry about quality of life. Glad you guys are doing well. What you went through would have been frustrating and soul destroying at the time.
  6. Wow interesting. Yeah I had ' semi dead leg' right through 3 Ironmans back between 2003-2005. I just coped by adjusting to walk/runs and pretty much walked most of each run. Claudication pain was in the calf to start with for years, would come on running but stop when I walked. Misdiagnosis for a very very long time. I stopped doing tris. Running got worse and worse. Soon riding was bad too. Adductors, hammies, hip flexors all affected not just calf. Eventually the blockage completely blocked around 2011 and I actually couldn't walk.....or do anything with my leg. Was told to wait for the collaterals take over more blood supply and prepare to be sedentary. I refused and re-trained myself to be reasonably active but I do so with pain (no hills on the bike, sitting in upright position only and walking no running). The body does adapt to an extent. Took up kayaking, do lots of weight training. But I'm over it. If I get this done and can run for more than 40 seconds in my lifetime I will consider it a miracle. Looking forward to it!
  7. Another question. Post Op care, physio and rehab. I currently live in a small country town and to get to a decent physio I have to drive 80kms. Same as a good hospital. I imagine for a while lifting/driving may not be possible. Then some specialist re-training of abs etc. My partner and I are quiet prepared to move to a bigger town (eg Newcastle) before I get the op done. Well for lifestyle as well really. Just sussing out the timing of things...... Am I over thinking things or would this be a sensible thing to do?
  8. Thank you. Sounds like a lucky improvement indeed I am glad your wife is o.k. My mother and her family has been through some weird vascular stuff in the past too so I'll be curious to see if anything is related. Although blockage is definitely whole physical injury to the artery (aero position, over training etc)...its just interesting how most people get away with doing this kind of sport with no issues, then there are a group of us that don't. Yet they still don't really know why. I'm very happy to get the names of these surgeons, knowledge is power. Its interesting as when I was diagnosed in 2012 in Perth WA, two vascular surgeons strongly advised against intervention. Over here (east) seems to be the opposite. Everyone I see asks 'why do you live like this'
  9. Thank you for the replies guys. Good news. Comfortably Numb mine is also a quite long blockage. One of the longest they have seen I'm told (lucky me not). How long was she out of action for? Aidan I will take your info with me when I meet with a vascular surgeon in Newcastle in Feb. I am in NSW. Dr Arvind Deshpande - who seems knowledgeable about the procedure but I'm not that sure how many he has done on athletes. He should know about the work of his colleagues in Melbourne I'm hoping I'm not too de-conditioned, I have pushed the pain limits for 8 years teaching myself to walk again(with nordic walking poles), ride (slower), swim, I do strength training too, kayaking etc. Also became a personal trainer some time during this time, though I gave that up a while ago. PS I'm 40yo. My concern these days is I'm noticing how uneven the body is becoming, interestingly more muscle bulk on the left side (bad side) than the right. Looking forward to getting a pain free life back (fingers crossed)
  10. Guys I've been away from this forum a REALLY long time. So hi! Pretty impressed to see these forums are still around. I am looking for people who are wiling to share their stories, experiences and all the nitty gritty truth in regards to rehab/recovery following Endarterectomy Surgery for Endofibrosis of External Illiac Artery. I have been living with complete occlusion of my external illiac artery on the left side for about 8 years, misdiagnosed before that (whilst doing long distance tri's). I decided to modify lifestyle (ahhh hence no tris, no running etc) for the last 8 years instead of undergo surgery at the time as it was 'strongly advised against'. Since that time, I believe the procedure has been refined a bit better and surgeons are clear that the only true fix is the procedure outlined in this article https://www.sciencedirect.com/science/article/pii/S1078588412000093 I'm come to the point in life where I am strongly considering the surgery as the disability and pain I live with affects every aspect of my life, as I cannot even walk without pain. My body has also adapted and is becoming 'lop sided' in other ways with hips, feet, ankles, everything starting to degrade and suffer. The mental health aspect is probably the worst. I know some of the pro's have had this done and I have already been in touch with Melissa Hauschildt. Anyone else out there willing to share how things went? Any failures? If you've had it done how are you living now? Any precautions etc. (PS I know I've seen some previous thread chats in the past but can't find them, also looking for recent info) Thank you. Melinda
  11. Thanks for that. Booked in with a sport physiologist in March (travelling til the, couldn't get in earlier) will get referral for MRI rather than go 'solo'. Want to ensure they look for the 'right thing' whatever that is and try to get max rebate. I've lived with it this long....must keep being patient.
  12. And no - my private health doesn't cover MRI or ultrasound. Maybe it does for some essential things but when it comes to sport its considered voluntary...'just stop running'.
  13. Ah right, didn't know that. Thought they were hard to get into. Yeah I get zero back pain and generally have a 'very healthly back'. But there has to be a hidden cause, something functioning. Been and done everything and am a 'core machine'. Its a totally mystery. Am over conservative treatments especially when they don't actually tell you what is wrong or what is being restricted. Its all just speculation based on the sports docs own beliefs usually or fad of the day. I was incredibly amazed when I found a proactive GP not long ago - sent me for a doppler ultrasound. Cost the bomb but at least he tried.
  14. Hi all, this is an interestic topic. I haven't been on here for years (at least 6) as the weakness/cramp like pain, numbness etc I get in my left leg, calf, foot, toes has restricted what I can do and basically put me off racing of any sort. Get it doing everything now including swimming and walking up hills. Multiple sports docs, physios, gurus over 10 years, all conservative, no one sends me for actual tests. Even booked self in for a doppler ultrasound thinking I had blood flow issues. NIL result just $1000 pain. But reading this about the MRI to diagnose nerve pathway issues has revoked my enthusiasm to ask for one. I find you have to demand a test. I get no back pain, have no functional movement test issues so on so the docs never send me, only to physios for more 'bum squeezing' which does nothing. MRI - roger.....now just to find a quack who will refer me. Mel
  15. melchski

    OT - WA

    Yes I'd do south over north anyday. Marg River, Yallingup, Dunsborough (go to Meelup Beach...is awesome there). If you want a nice little 'hideway' cottage that is something 'different' try the cottages at Wise Winery (but book early as there are only 4 I think). The Karri Forrest is nice too but probably not that special if you are used to forrests. The Coastline is nice down near Albany. Not 'that' much to do in Perth, but yes Rottnest is nice and great for Diving.
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